A Combined strategy of age-old Til-Mash Pinda Sweda (TMP), Pizhichil, Anuvasana Vasti, and Jivan Vidya support is effective in the long-term management of muscular weakness.

Dr Mukesh D. Jain and his team at Sanjivani are pursuing since 1995, A number of promising leads in their quest to understand the causes of the metabolic diseases of muscles.

The weaknesses of muscles (myopathies) are the diseases interfere with chemical reactions involved in drawing bio-energy (Prana Shakti) from food. Normal, fuel molecules derived from food must be broken down further inside each cell before they can be used by the cells’ mitochondria to make the energy molecule ATP. The mitochondria inside each cell could be called the cells’ “engines.” The metabolic muscle diseases are caused by problems in the way certain fuel molecules are processed before they enter the mitochondria, or by the inability to get fuel molecules in to mitochondria. Muscle requires a lot of energy in the form of ATP to work properly. When energy levels become too low, muscle weakness and exercise intolerance with muscle pain or cramps may occur.

In a few metabolic muscle disorders, symptoms aren’t caused so much by a lack of energy, but rather by unused fuel molecules that build up inside muscle cells. This buildup may damage the cells, leading to chronic weakness. Metabolic muscle diseases that have their onset in infancy tend to be the most severe, and some forms are fatal. Those that begin in childhood or adulthood tend to be less severe, and changes in diet and life style can help most people with the milder forms adjust.

WHAT CAUSES MUSCLE WEAKNESS?

Most muscle weakness is caused by defects in the enzymes (Agnis) that control chemical reactions used to breakdown food. Enzyme defects are caused by flaws in the genes that govern production of the enzymes. A gene is a”recipe” or set of instructions for making a protein, such as an enzyme. A defect in the gene may cause the protein to be made incorrectly or not at all, leading to deficiency in the amount of that enzyme. Genes are passed from parents to children. Therefore genetic defects can be inherited.

In normal metabolism, food provides fuel that’s processed inside the cells, producing energy (ATP) for muscle contraction and other cellular functions. In metabolic myopathies, missing enzymes prevent mitochondria from properly processing fuel, and no energy is produced for muscle function.

Muscular dystrophy refers to a group of genetic diseases characterized by progressive weakness and degeneration of the skeletal or voluntary muscles which control body movement. The muscles of the heart and some other involuntary muscles are also affected in some forms of muscular dystrophy, and a few forms involve other organs as well. The muscular dystrophies include many inherited disorders such as: Becker’s, Duchenne, Facioscapulo-humeral, Limb-girdle, Emery-Dreifuss, and Myotonic and myotonia congenita.

MOST COMMON NEURO_ MUSCULAR Disease among Children

Most children I see are affected by Muscular dystrophies, inflammation of muscles, cerebral palsy, motor problems related to injuries at the time of birth or thereafter, and also birth-related injuries to the arms and legs – mostly to the nerves in the arms.

The most common diagnosis would be spasticity in children, muscular dystrophy and different kinds of delays such as not walking, crawling, and so on. Other less common problems are spinal muscular atrophy, neuropathies, and so on.

Duchenne muscular dystrophy is the most common form affecting children, and Myotonic muscular dystrophy is the most common form affecting adults. Muscular dystrophy can affect people of all ages. Although some forms first become apparent in infancy or childhood, other may not appear until middle age or later.

These disorders are distinguished from each other by the type of inheritance (sex-linked, dominant gene, recessive gene), the age when symptoms appear, and the types of symptoms that develop. Because these are inherited disorders, risks include a family history of muscular disease.

Symptoms of muscular dystrophy Weakness is primary symptom

• Progressive frequent falls
• Delayed development of muscle motor skills
• Difficulty in walking (delayed walking)
• Difficulty using one or more muscle groups (the specific muscles affected depends on the type of dystrophy)
• Poor muscle tone and curved spine.

Muscular dystrophy is diagnosed by Serum CPK (an enzyme found in muscle) and EMG (electromyography) An ECG is also done to monitor changes in cardiac status.

This disease may also alter the results of the following tests:

• Myoglobin in Urine/Serum
• LDH (Lactate dehydrogenase)
• Creatinine
• AST (Aspartate aminotrasferase)

What are the complications?

• Joint contractures, deformities & scoliosis.
• Permanent, progressive disability
• Decreased functional ability to care for self
• Mental impairment & Depressive manifestations
• Cardiomyopathy, respiratory failure and death.

What is the prevention?

Ayurvedic Garbha Samskar & Genetic counseling is advised when there is a family history of muscular dystrophy. Women may be asymptomatic but still be carrier of gene for the disorder. Duchenne muscular dystrophy can be detected with about 95 % accuracy by genetic studies performed during pregnancy.

There are NEW TREATMENT options

There is a big push to find a cure or at least modify the problems in different ways. There are newer treatment options.
Panch Karma therapies, specially developed molecules (Mamsagni Rasayana) and Yogic techniques may be effective in the long term management of muscular weakness. It may help people to maintain muscle strength and function. In addition, some people with metabolic disorders have benefited from strict Ayurvedic dietary changes. There is evidence that those with carbohydrate-processing problems may be helped by a natural high-protein diet, while those with difficulty processing fats may do well on a natural diet high in carbohydrates in low in fats.

Ayurvedic herbs which safe guard the function of liver can be very effective in reversing heart failure in the patient of myopathies. Orthopedic appliances such as braces and wheelchairs can improve mobility and self-care abilities. In some cases, surgery on spine or lower extremities may help improve function and slow deterioration.

Dr Mukesh Jain and his team at Sanjivani Wellness Bhilai are pursuing a number of promising leads in their quest to understand the causes of the metabolic diseases of muscles. We wish to inform you of the promising results that we have achieved at our wellness clinic in treating the debilitating effects of muscular weakness using Ayurveda and Yoga based techniques. The Sanjivani clinic focuses on – (i) Reducing weight, (ii) Improving muscle tone and functional ability in patients using Ayurvedic Panchkarma, scientifically verified Ayurvedic medicines, and yoga.

Ayurveda considers this condition as Mamsa-vata-kshaya (MVK) related to beeja dosha and impairments of Mamsagni (muscle enzyme). It involves deranged Vata and subsequent degeneration of muscles and structures related to it. Ayurvedic treatment might slow or stop the progression of muscle degeneration. A combined strategy of age-old Til-Mash Pinda sweda (TMP), Pizhichil, Anuvasana Vasti, Mamsagni Rasayana and Yogic support is effective in the long-term management of muscular weakness. So far, we have treated over 200 myopathic patients (Including dystrophic patients of Duchenne type, Bucker type and Limb-Girdle type) with very promising results such as (i) weight loss (ii) Decrease in blood CPK level (iii) Relief in Pain and Stress (iv) Decrease in exercise intolerance and walking difficulty (v) Further check on muscle wasting and contractures.

MAMSAGNI RASAYANA

The Mamsagni-G is Gurvel, Guggul and Gold (G3) based new Ayurvedic formula developed by Ayurveda Acharya Mukesh Dev Jain in 1998 for his care through research project on neuro-muscular diseases. The active ingredients are bio-enhanced and standardized Marich, Triphala, Gurvel, Guggul, Kuchla, Parad and Gold bhasma. This new compound molecule regulates muscular metabolism and useful as a safe Ayurvedic medicine for the management of muscular dystrophies.

The Marich promotes Mamsagni (muscle enzyme system) Triphala Guggul is well known Srotorodhahara (Correct membrane defect) and regulates fat metabolism. Kuchla boost the neuro-muscular tone while the gold bhasma retards the process of muscular degeneration. Gurvel also called Amrita (nectar) is best immunity modulating (Rasayana) drug. The combined effect is neuro-muscular Vata-Pitta-Kapha balancing which is evident by promising clinical results such as :-
(i) Weight loss,
(ii) Decrease in blood CPK level,
(iii) Decrease in walking difficulty and
(iv) Increase in neuro-muscular tone.

The practical therapeutic benefits of weight reduction are not only obvious but potentially greater i.e. improved muscle power/weight ratio. Since in a clinical research we have noticed a fall in serum creatine kinase it means there is check on further muscle destruction.

Dose: The therapeutic oral dose is 20 mg/kg body weight administered in two divided doses. The medicine can be given preferably before meal with honey or with Dasmula Ghrita.

References:-

1.	John Walton and David Gardener (1988) : The Muscular Dystrophies; In : Disorders of Voluntary Muscles, Ed : Sir Walton (5th Edn), Churchill Livington.
2.	Mokri B, Engel AG (1975) : Duchenne dystrophy : electron microscopic findings pointing to a basic or early abnormality in the plasma membrane of the muscle fibre., Neurology (Minneapolis) 25: 1111
3.	Rowland IP (1976) Pathogenesis of muscular dystrophies. Archives of Neurology 33: 315
4.	Ebashi S, Sugita H (1978): The Role of calcium in physiological and pathological processes of skeletal muscle. In :abstracts of the Ivth International Congress on Neuromuscular Diseases, Montreal.
5.	Wakyama Y, Bonilla E, Schotland DL (1983) : Plasma membrane abnormalities in infants with Duchenne muscular dystrophy. Neurology (Cleveland) 33: 1368-1370
6.	Nair P Ramchandran et al (1980) : Pseudo-hypertrophy muscular dystrophy- An Ayurvedic Approach. Journal of Res. In Ayurveda & Siddha 1:3 (429-437)
7.	Jain Mukesh D (2000) Genetic Muscular dystrophy. The Madhurima (Bhaskar Weekly) May 2000
8.	Charak Samhita, Chikitsa Sthana 28:14, Chaukhamaba Sanskrit Series Office, Varanasi, India
9.	Bhaishajya Ratnavali, Comm. Kaviraj A D Shastri, Chaukhamaba Sanskrit Series Office, Varanasi (1991)
10.	Rasayoga Sagar, Krishnadas Academy, Varanasi (1983) V0l I & II
11.	Jain Mukesh D (2001) Muscular dystrophy- Ek Jatil Roga. Journal Nirogadham 23:1 (81-82)
12.	Jain Mukesh D (2001) Fight His Dystrophy Now! Journal of National Integrated Medical Association 43:5(5-7)
13.	Gada Nigraha : Chaukhamaba Sanskrit Series Office, Varanasi (1968)
14.	Jain Mukesh D, Yoga Annapurma and Pandey MP (2002): Preliminary Study of Integrative Approach of Panch karma, yoga and Ayurvedic medicine in the management of Muscular dystrophy: 46 patients. World Health Review, 1:1 ( 33-35)
15.	Jain Mukesh D (2003) : Duchenne Muscular Dystrophy : Integrative Ayurvedic Treatment & Management. Light on Ayurveda, Vol. II, Issue 2, Winter Issue, Mashpee (USA)
16.	Jain Mukesh D (2005) Panch Karma & Yogic Management of Muscular dystrophy. Arogyadham (Basant Ritu issue) 45-46
17.	Jain Mukesh D (2005) Ayurvedic Management of Duchenne Muscular Dystrophy. Global Ayurveda Vol. 1:3 (24-29)
18.	Jain Mukesh D (2006) Mamsagni Rasayana in the treatment of Duchenne Muscular Dystrophy: 28 patients.. Ayurvedic Patrika Nasik India Vol. 1:3 (24-29)

Resources

Muscular Dystrophy Association
3300 E Sunrise Dr., Tucson, AZ 85718-3208
Phone: 800.572.1717, or 520.529.2000 – Fax: 520.529.5300
E-mail: mda@mdausa.org
Web site:www.mdausa.org

Muscular Dystrophy Association of Canada
Association Canadienne de la Dystrophie Musculaire
2345 Yonge Street, Suite 900, Toronto, Ontario, Canada M4P 2E5
Phone: 416.488-2699 – Fax: 416.488-7523

Duchenne Parent Project: Becker and Duchenne muscular dystrophy
125 Marymont Court, Middletown, Ohio 45042

Spinal Muscular Atrophy Resources (including Werdnig-Hoffman Disease and Kugelberg-Welander Disease)

SMA mini-fact sheet, National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD, Sept. 1997
Families of Spinal Muscular Atrophy
P.O. Box 196, Libertyville, IL 60048-0196 Phone: 800.886.1762

Web page: http://www.fsma.org/ See other SMA links

Online resources:

Note: The following resources have links to numerous online resources on a variety of neuromuscular diagnoses, not just the diagnosis implyed by their name.

• Muscular Dystrophy Association of South Australia, Inc.
• Muscular Dystropyy Association, Australia
• Duchenne Muscular Dystrophy, Australia
• Muscular Dystrophy Ireland
• Muscular Dystrophy Group Of Great Britain and Northern Ireland
• Information for non-scientists on muscular dystrophies, Leiden University Medical Center, Netherlands
• MuscleNet (Italy)
• Charcot-Marie-Tooth
• Finnish Muscular (Dystrophy) Diseases Association
• Neuromuscular Patient Associations and Support Groups
• Search engine (Yahoo) for muscular dystrophy
• Ataxia resources
• Myotonic Dystrophy: Making an Informed Choice brochure (pdf file format) Spinocerebellar Ataxia (pdf file format), Making an Informed Choice About Genetic Testing brochure Genetic Testing for Neurological Conditions, Medical Genetics and Neurology, University of Washington, Seattle, WA, USA

Neuromuscular information

• Neuromuscular diseases information – American Academy of Neurology
• Neuromuscular Disease Center , Washington Univ School of Medicine, St. Louis, MO
• Neuroscience Web – search engine for neuroscience
• Muscular Dystrophy , Merck Manuel

International Organizations:

Argentina
Association Distrofia Muscular
Cordoba 5428, BUENOS AIRES

Armenia
Charity Association of Neurohereditary Diseases
Amiryan str. 10. Apt. 15, YEREVAN, 375010, Republik of Armenia
Phone: 374.1.56.17.81 – Fax: 374.1.52.59.19
E-mail: alamat@arminco.com

Australia
Muscular Dystrophy Association of New South Wales
Locked Bag 9932, BEACONSFIELD NSW 2014
Phone: 61.2 9697 9111 – Fax: 61.2 9697 9092
E-mail: mdansw@gunnsoft.com.au

Muscular Dystrophy Association Inc. South Australia
GPO Box 414, ADELAIDE SA 5001
Phone: 61.8 8234 5266 – Fax: 61.8 8234 5866
E-mail: info@mdasa.org.au
Web site: http://www.mdasa.org.au

Muscular Dystrophy Association of Canberra
C/- GPO Box 414, Adelaide SA 5001

Muscular Dystrophy Association of Tasmania
18 Chettle Street, Devonport TAS 7310
Phone: 61.3 64 249 624 – Fax: 61.3 64 249 624

Muscular Dystrophy Association of Western Australia
PO Box 328, West Perth WA 6872
Phone: 61.8 9300 8728 – Fax: 61.8 9346 3487

Queensland Muscular Dystrophy Assoiation
Locked Bag 3000, Spring Hill QLD 4004
Phone: 61.7 3831 2444 – Fax: 61.7 3831 2666

Muscular Dystrophy Association Inc
PO Box 1050, Moonee Ponds, Victoria 3039
Phone: 61.3 9370 0477 – Fax: 61.3 9370 0393
E-mail: bms@mda.org.au
Web site: www.mda.org.au

Belgium
Assoc Belge contre les Maladies Neuro-Muscularies
Rue du Blanc Bios 2, B-1360 PERWEZ
Phone: 081 65 5885 – Fax: 081 65 5885
E-mail: abmm@village.uunet.be
Web site: http://www.awiph.be/

Flemish Muscular Disorders Association
Vlaamse Vereniging Neuromusculaire Aadoeningen, NEMA
Hutsepotstraat 50, B-9052 Zwijnaarde – Gent
Phone: 32.9 222 64 46 – Fax: 32.9 222 64 46
E-mail: nema@pandora.be
Web site: http://users.pandora.be/Nema/

Birmuda
The Birmuda Students MDA
PO Box 596, Mbarara, Uganda

Brazil
Assoc Brasileria de Distrofia Muscular
R Eng Teixerie Soares 715, 955 055 Butanta, Sao Paulo SP
Phone: 55.11 814 8562 – Fax: 55.11 815 4272

British Honduras
British Honduras Muscular Dystrophy Association
Insituto Hondureno do Rehabilitacion
Apartado Postal # 1056, Tegucigalpa Municipio del Distrito Central Honduras
Phone: 504.32 8761

Bulgaria
Bulgarian Neuromuscular Diseases Association
96. Pliska street entrance 2, App 4 P.Box 10, BG-7004 ROUSSE
Phone: 359.82 452 055 – Fax: 359.82 237 045
E-mail: rousse@lgi-bg.org

Canada
Muscular Dystrophy Association of Canada
2345 Yonge Street, Suite 900, Toronto, ON M4P 2E5
PhonE: 1.416 488 7523 – Fax: 1.416 488 7523
E-mail: info@mdac.ca
Web site: www.mdac.ca

China
China Muscular Dystrophy Association
Div Neuromuscular Disorders Research
Chinese Pla Gen Hospital, 28 Fuxin Road, Beijing 100853
Phone: 86.688 7329 3721 – Fax: 86.821 7073
E-mail: dgshen@bj.col.com.cn

Colombia
Colombia Muscular Dystrophy Association
Fund Omega
Carrara 30 no 89-79 (la Castellana) Bogota
Phone: 57.1 236 5004

Croatia
Union of Muscular Dystrophy Societies of Croatia
Nova Ves 44, 10000 Zagreb
Phone: 385.1 466 6849 – Fax: 385.1 466 6849
E-mail: marija.sostarko@zg.tel.hr

Czech Republic
Czech Republic Muscular Dystrophy Association
Petyrkova 1953/24, 148 00 Praha 4 – Chodov
Phone: 420.7.9337 77 – Fax: 420.7.9337 77

Denmark
Muskelsvindfonden
Kingsvang Alle 23, DK-8000 AARHUS C
Phone: 45.8946 2222 – Fax: 45.3962 2287
E-mail: mrf@muskelsvindfonden.dk
Web site: www.muskelsvindfonden.dk

Dominica
Instituto de Neurosciencias y Especialidades
Club Rotario 67, En Sanche Ozama, Santo Domingo

Egypt
Egypt Muscular Dystrophy Association
19 Elmesafer Khana Street, Elgomrok_Alexandria 21111

Estonia
Estonian Muscular Dystrophy Association
Department of Neurology and Neurosurgery
Mustamae Hospital, Sutiste tee 19, EE0108 TALLINN

Finland
Lihastautilitto RY De Meskel Handikappades
Forbund FR, Lantinen Pitkakatu 35, 20100 TURKU
Phone: 358.225 00233 – Fax: 358.225 35 503

France
AFM Association Francaise contre les Myopathies
13 Place de Rungis, 75 013 PARIS
Phone: 33.1 44 16 2727 – Fax: 33.1 44 16 22 62
E-mail: afm@mail.afm.genethon.fr
Web site: www.afm-telethon.asso.fr

Germany
Deutsche Gesellschaft fur Muskellkranke eV
Im Moos 4, 79112 FREIBURG
Phone: 49.7 665 7667 20 – Fax: 49.665 9447 20
E-mail: DGM_BGS@t-online.de
Web site: www.dgm.org

Greece
MDA Hellas – Greece
296, Kifissias Avenue and Navarinou Str, 15232 Halandri, Athens

Guam
Guam Muscular Dystrophy Association
Guam Lytico and Bodig Assoc Ireland, PO Box 1458, Agana 96910
Phone: 671.472 3581 – Fax: 671.472 3583

Guatemala
Assoc Gutemalteca de Rehabilitacion de Lisiados
6a Avenida “A” 36-01, zona 11, Guatemala City, Guatemala, Central America
Phone: 502.76 7295 – Fax: 502.76 2365

Hungary
Hungary Muscular Dystrophy Association
National Federation of the Assoc of Persons with Disabilities
H – 1300 Badape St., PO Box 141

India
Care through Reseach on Muscular Dystrophy
Sanjivani Wellness Centre, Priyadarshani (East)
Supela, Bhilai 490023 CG Phone: 91.788. 2294746 – Fax: 91.788.5030 458
E-mail: mjain@sanjivaniwellnessbhilai.org

All India Muscular Dystrophy Association
Anaj Mandi, Nabha Gate, PATIALA 147 001
Phone: 91.175 215 786 – Fax: 91.175 200 786
E-mail: aditi98172@yahoo.com

India Muscular Dystrophy Association
M.I.G.72, A.P.H.B. Colony, Machilipatnam-521 001. A.P. India
Phone: 91.086 722 817

Muscular Dystrophy Support Group, South India
E-mail: ranil@vsnl.com

Ireland
Ireland Muscular Dystrophy Association
Carmichael House, North Brunswick Street, Dublin 7
Phone: 353.1 872 1501 – Fax: 353.1 872 4482

Israel
Israel Muscular Dystrophy Patients Association
Rashi street 46-1, Rishon le Zion 75308
Phone: 972.3 958 3439
E-mail: ygold1@bezegint.net

Israel Society for Neuromuscular Diseases
Alyn Hospital Olswanger Street, PO Box 9117
Kiryatyevel, Jerusalem
Phone: 972.249 4222 – Fax: 972.243 7388

Italy
Unione Italiana Lotta alla Distrofia Muscolare
Via P.P. Vergerio, 17 – 35126 Padova, UILDM Secretariat
Phone: 39.49 802 1002 – Fax: 39.49 802 2509
E-mail: dmredaz@tin.it
Web site: www.uildm.org

Japan
Japan Muscular Dystrophy Association
National recuperations Education Center
2-2-8 Nishi-Waseda-Edu Center, Sinjuko-Ku, Tokyo 162
Phone: 81.5273 2930 – Fax: 81.35 215 1735
E-mail: yk@socrates.berkeley.edu

Jordan
Jordan Muscular Dystrophy Association
Al-Hussein Society for Rehabilitation, PO Box 5102

Korea
Korea Muscular Dystrophy Association
75-9 Bampopong, Seochogu, SEOUL
Phone: 86.02 532 3336

Latvia
Latvia Muscular Dystrophy Association
PO Box 437, Grondnas 40-2, Latvia LV 5417
Phone: 371.56 006

Lithuania
Lithuanian Neuro-muscular Association
Eiveniu, 2, KAUNAS 3007
Phone: 370.7 228 753 – Fax: 370.7 220 733

Malaysia
Malaysia Muscular Dystrophy Association
13 Jalan 12/10, 47200 Petalign Jaya
Selangor Dural Ehsan

Malta
Muscular Dystrophy Group
4, Gzira Road, Gzira GZR 04
Phone: 356.346 688 – Fax: 356.318 02
E-mail: mdg@mdgmalta.com
Web Site: www.mdgmalta.com

Mexico
Sociedad Mexicana de la Distrofia Muscular AC
Peten No 185, Col Narvarte, Delegacion Genito Juarez 03110D
Phone: 52.52 3 90 03

Moldova
Moldovian Myopathy Association
2001, str. Bulgara 24/B2, Chisinau, Republic Moldova
Phone: 3732.27 26 87
E-mail: vtonu@mednet.md

Morocco
Assoc Marocaine Contre Les Myopathies
BP 5668, Rabat Institut, RABAT
Phone: 212.7 75 05 39

New Zealand
New Zealand Muscular Dystrophy Association
PO Box 16-238, Sandringham, Auckland
Phone: 64.9 815 0247 – Fax: 64.9 815 7260
E-mail: director@mda.org.nz
Web site: www.mda.org.nz

Norway
Norway Muscular Dystrophy Association
Foreningen for Muskelsyke, P.B. 4395 Torshou, 0402 OSLO
Phone: 47.2300 8080/81 – Fax: 47.2300 8109/19

Pakistan
Muscular Dystrophy Association of Pakistan
Mehran Medicine Market, College Road, Rawal Pindi
Phone: 92.051 555 950 – Fax: 92.051 539 950
E-mail: drkhamaj@isb.paknet.com.pk

Papua New Guinea
Papua New Guinea Muscular Dystrophy Association
C/- Dauli Teachers College, PO Box 16, TAARI, SHP
Phone: 675.508 080 – Fax: 675.508 179

Peru
Asociacion de Distrofia Muscualr del Peru – ADM Peru
Av. Del Ejercito 660-F, Lima 18
Phone: 51.1 442 0407
E-mail: setemin@pop1.terra.com.pe
http://admperu.cjb.net

Poland
Polish Neuromuscular Association
SW. BONIFACEGO 10, PL-02-914 WARSZAWA
Phone: 48.642 7507 – Fax: 48.642 7507
Web site: www.idn.org.pl/tzchm

Portugal
Portugal Muscular Dystrophy Association
APMG.DNM – Hospital de Santa
Maria – Centro Estudos, Av Prof Egas Moniz, P-1699 LISBOA
Phone: 351.1 797 6882 – Fax: 351.1 795 7474

Romania
Asociatia Distoficilor Muscular din Romania
Str Bailornr 197, Vilcele Jud, COVASNA
Phone: 40.067 315 665 – Fax: 40.067 315 665

Romania
Associatia Distroficilor Muscular din Romania
Bailornr 197, Vilcele Jud, COSVANA
Phone: 40.1 613 6480

Russia
Myafond Charity Myasthenic Foundation
Chasovaya Street 20, 125315, MOSCOW
Phone: 7.095 151 26 51 – Fax: 7.095 151 26 51

Russia Muscular Dystrophy Association
Rublevskoeshosse, d 44-1 Apt 162
121609, MOSCOW
Phone: 7.095 412 9158 – Fax: 7.314 632 2826

Singapore
Singapore Muscular Dystrophy Association
Phone: 1.314 632 6981 – Fax: 1.314 632 2826

Slovenia
Slovenia Muscular Dystrophy Association
Linhartova 1/111, 1000, LJUBLJANA
Phone: 386.61 17 20 500 – Fax: 386.61 132 8142
E-mail: dds@se.net

South Africa
Muscular Dystrophy Foundation of South Africa
National Office, PO Box 1535, PINEGOWRIE 2123
Phone: 27.011 789 7634 – Fax: 27.011 89 7634
E-mail: national@mdsa.org.za
Web site: www.mdsa.org

Muscular Dystrophy Foundation of South Africa
National Office – Johannesburg, C/- PO Box 1535, PINEGOWRIE 2123

Spain
Association Espanola de Enfermedades Musculares
Gran Via Corts Catalanes 562, 8011, BARCELONA
Phone: 34.3 45 16 544 – Fax: 34.3 45 16 904
E-mail: asem15@suport.org

Sweden
Swedish Assoc of Neurogically Disabled
Box 3284, S-10365, Stockholm
Phone: 46.8 677 7010 – Fax: 46.8 30 14 10
E-mail: nhr@nhr.se

The Swedish National Association for Disabled Children
Box 6607, S-11384, Stockholm
Phone: 46.736 2600 – Fax: 46.8 30 14 10
E-mail: mail@riks.rub.se
Web site: www.rbu.se

Switzerland
Association Suisse Romande contre la Myopathie
Chaemin de la Traverse 12, Case postale 179
CH-1170 AUBONNE
Phone: 41.21 808 7411 – Fax: 41.21 808 8111
E-mail: asrm@planet.ch
Web site: www.asrm.ch

Switzerland Muscular Dystrophy Association
Swiss Foundation for Research on Muscular Diseases
CHemin des Jorkils 4, CH-2016 Cortailod
Phone: 41.32 842 47 38 – Fax: 41.32 842 47 38
E-mail: fsrm.rogan@caramail.com

Taiwan
Taiwan Muscular Dystrophy Association
No 100, Shin-Chuan 1st Road, Department of Neurology
Kaohsiung Medical College, KAOHSIUNG 807
Phone: 886)7 312 1101 – Fax: 886.7 323 4237
E-mail: geng@mail.nsysu.edu.tw

The Netherlands
Vereniging Spierziekten Nederland
Lt Gen can Heutslaan 6, 3743 JN, BAARN
Phone: 31.35 548 0480 – Fax: 31.35 548 0499
E-mail: vsn@vsn.nl

Turkey
Neuromuscular Disorders Association of Turkey
Hatboyu Cad no 12, Yesilkoy 34800, ISTANBUL
Phone: 90.212 573 0975 – Fax: 90.212 663 0168
E-mail: kashasder@turk.net

Ukraine
Ukrainian Muscular Dystrophy Association ERB
55/11 Shevchenko Street, Lviv-39, 79039
Phone: 380.322 330047
E-mail: erb@lviv.net

United Kingdom
Muscular Dystrophy Campaign
7-11 Prescott Place, LONDON SW4 6BS
Phone: 44)171 720 8055 – Fax: 44.171 498 8963
E-mail: info@muscular-dystrophy.org
Web site: www.muscular-dystrophy.org

Uruguay
Centro De Ayuda Social A Los Enfermos Neuromuscular
Silcinesa 3030, MONTENIDEO
Phone: 598.81 6823 – Fax: 598.81 0045

Venezuela
Coundacion de la Distrofia Muscular
Conjunto Res Jarkin Bello Camp, Apto B-1D Ave Libertado Chacac, CARACAS 1060
Phone: 58.2 262 15 65 – Fax: 58.2 263 07 084

Yugoslavia
Yugoslavia Muscular Dystrophy Association
Savez Distroficara Jugoslavije, Marksima Gordog 28a, 11000 BEOGRAD
Phone: 381.11 668 599 – Fax: 381.11 439 854

Zimbabwe
Muscular Dystrophy Association of Zimbabwe
3rd Avenue / George Silundika Street, PO Box 3468, BULAWAYO
Phone: 263.09 727 40 – Fax: 263.09 727 40
E-mail: mdaz@acacia.samara.co.zw

http://www.BeckerMuscularDystrophy.Org/results.htm

Becker Muscular Dystrophy (BMD) is one of the nine types of muscular dystrophy and is considered the more mild cousin of Duchenne Muscular Dystrophy, the most common inherited childhood lethal disorder of humankind. BMD disease affects approximately 1 in 30,000 male births regardless of race or ethnicity, and there are an estimated 100,000 BMD patients worldwide. This site is designed to serve as a conduit between people affected by Becker Muscular Dystrophy, including patients, families, doctors and scientists. This site can hopefully serve as a BMD community on the web. Please fill out the questionnaire to become a part of the BMD community on the web. To find people with BMD, visit our database of BMD patients.

 

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